Queen Letizia as honorary president of the Spanish Federation of Rare Diseases

[Clara]

January 12, 2017. Working meeting of the FEDER board in Madrid.

[Clara]

[Nuno]

Daily Mail http://www.dailymail.co.u...agement-sunny-Madrid.html

The outfit looks so much better this time with the red top and the heels from the state visit to Portugal  Also the Bimba Y Lola earrings help a lot 

More pics here http://josepgegundez.phot...PPiUrjCA/C000068aKG.mLQJ0






semana

[Rita]

cute outfit 
i quite like the skirt and shoes

[Clara]

Elena Escalante, delegate of the Rare Diseases Federation (Feder) in Madrid, has praised the role that Queen Letizia has played in the development of the federation and in the dissemination of these pathologies and ensures that "thanks to her work, her involvement, her support many doors have been opened to us."

Escalante, in an interview with Servimedia on the occasion of the commemoration of Rare Disease Day on February 28, said that "the Queen is discreet and humble and does a wonderful job in the federation." There is a before and after in the history of Feder's 18 years. When she started to support us things changed, she has opened many doors for us"

The delegate of Feder also stressed that "like the federation, the Queen is clear that research and education comes first, and in that sense has played a very important role."

http://www.servimedia.es/...ias/Detalle.aspx?n=660764

[Clara]

March 2, 2017. Official Event to commemorate Rare Diseases Day at El Prado Museum.

Letizia gave a short speech, and in the end said that after she finished writing the speech a few days ago (telling us that she writes her own speeches), she met a woman yesterday at the women and disabilities congress in Avila She already knew this woman, she has a son with a rare disease. And she told Letizia yesterday that her son is dying, that there is a medicine but that he won't get it in time and that she will have to go on like other parents have had to do. She asked Letizia to not give up because her message is very important. And Letizia finishes her speech saying that this is why she's there, she's there because we need more scientific research and because she's not giving up.

https://www.youtube.com/watch?v=3BpMnk_atV0

[Clara]

[Clara]

[Clara]

[loubna]

love both outfit, especially the first one 

[Nuno]

She's wearing a repeated HB suit - worn for the first time during their short trip to Puerto Rico, last year.


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zimbio

[Nuno]

More pics http://josepgegundez.phot...pIyJrTTI/C000068aKG.mLQJ0

Leti's speech https://www.youtube.com/watch?v=3BpMnk_atV0

[Nuno]

semana

[Nuno]

La Familia Real Espa?ola - facebook

[Nuno]

Leti's speech was great and really emotional, mainly because she talked about a mother (she met the day before in ?vila) of a child suffering from a rare disease who is dying that begged her to not stop calling people's attention to scientific research and its importance, to work tirelessly.








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