Normally I come to comment only on the look (and it is a pretty dress) but this is a cause very close to the heart of Leti and she made a very excellent and heartfelt speech and I salute her for it.
Video
https://www.youtube.com/watch?v=Dfnwtr2M74gGoogle translation of the most emotional part of the speech
https://www.casareal.es/E...os_detalle.aspx?data=6508"I end with a memory for Marco, a five-year-old boy I met just on a day like today, the world day for rare diseases, in León. Marco had Schaaf-Yang syndrome and more than two months ago, his father Ricardo sent me an email to tell me that after five years of multiple medication, with severe intellectual disability, with a tracheostomy, with a feeding tube, but also with all the care possible and with all the love in the world, two months ago Marco died accompanied and surrounded by his mother, his father and his brothers. That day in León, Marco and I couldn't exchange a word, but he put his hand on mine, kissed me and looked at me, and that was enough. Marco is not the first and he will not be the last either, we are talking about rare diseases and when they cannot be cured we can take care of those who suffer from them. Human treatment, resources, comprehensive care, complicity in the process, emotional support, because even when a professional is faced with a patient who has no chance of being cured, he needs to know how to do it. There are many steps to take, we are all working on it, we are doing it together and above all you are the important ones, you know you will always have me, and I am very grateful for that, on your side."
